From time to time, Facebook provides me with more than a way to burn several hours aimlessly commenting on photos, self-promoting, over-sharing and creeping the Walls of former classmates. Tonight a status update of a home-town friend managed to generate fascinating and divergent discussion. What started as the topic of perversely high hydro bills became a comparison of hydro billing across the country, and mutated into discussion about the cruel and unusual Ontario practice of charging different rates for hydro depending on the time of day, and then further branched off into discussion about how this impacts the families of children who have high medical care needs. Not only did I learn a thing or two about exactly how negligent our government is when it comes to assisting families with medically fragile children, but I was angered and brought to tears by a blog post of one of the women I was interacting with in the thread. When I say that I cannot imagine how difficult it must be to have to spend every day on edge, perpetually in fight-or-flight mode, I say this as someone who has trained as a registered nurse, has recently dealt with a father in-law with long-term health challenges related to a stroke, and participated in respite care of my dying mother-in-law. I’m well versed in medical hoop jumping – but not the sheer stress of being left to virtually fall through the cracks because there isn’t sufficient support on any level. Allison shared a recent blog post on this subject with me tonight, and I’d like to share her experience and insight, because it’s thought provoking and emotionally stirring.
Aren’t you glad you have coverage? from Confessions of an Unintentional Sherpa blog.
It’s always heartwarming at Christmas to know that our government is burning money on helpful items like fake lakes, parties to promote prolific pork barrelling, and other such necessities. After all, who needs disabled people anyway? Sheesh.